Skip to content Skip to navigation

Caring for Patients With AIDS

May 1, 2003
by root
| Reprints
An interview with John R. Brechtl, MD, FACP


An interview with John R. Brechtl, MD, FACP Patients with AIDS can present unique challenges to nursing homes. Not only do they tend to be younger than the traditional senior population, they might also suffer from the stigma of being infected with HIV or substance abuse problems. One facility that has met the call to care for these patients is Terence Cardinal Cooke Health Care Center (TCCHCC), a 729-bed skilled nursing facility in New York City sponsored by the Archdiocese of New York and affiliated with New York Medical College. TCCHCC's Vice-President for Medical Affairs and Associate Medical Director John R. Brechtl, MD, FACP, described TCCHCC's approach to caring for patients with AIDS to Nursing Homes/Long Term Care Management Assistant Editor Douglas J. Edwards. Edwards: Tell us how your program for patients with AIDS got started.

Dr. Brechtl: The AIDS Discrete Program was initiated in 1989 as the first long-term treatment site for patients with advanced AIDS and subsequently grew into a 156-bed unit. It has admitted and treated approximately 1,500 patients, or about 10% of the New York City AIDS population since the beginning of the epidemic. All patients are admitted from area hospitals and have advanced disease and/or are disabled severely from HIV infection and related conditions. The mean age is 48 years and 18% of patients are female. Approximately two-thirds have intravenous illicit drug use as their primary HIV risk factor. Nearly all patients are African-American or Hispanic. Our facility demographics are typical of AIDS patients in nursing homes.

Prior to the availability of protease inhibitors and highly aggressive antiretroviral treatment (HAART) regimens in 1996, a patient's experience was like a "death march" because of ineffective treatments. Since then, the mortality rate has decreased, although there is still a mortality rate of 15% within three months of admission to the program. Another 25% do not tolerate or develop resistance to HAART regimens. This results in a total treatment failure rate of 40%. There have been, on average, 180 new admissions per annum since 1996, when protease inhibitors became available.

Edwards: What types of AIDS-related illnesses affect your population?

Dr. Brechtl: Most of the Centers for Disease Control AIDS-defining diagnoses are seen and treated. These include opportunistic infections and malignancies. The prevalence of some of these diagnoses has changed since the advent of HAART regimens. Conditions like wasting syndrome are frequent in the more advanced cases. Nearly half the patients have neuropsychiatric conditions as a direct result of HIV infection and/or opportunistic infections or malignancy. AIDS dementia, central nervous system toxoplasmosis, progressive multifocal leukoencephalopathy, and non-Hodgkin's lymphoma are common causes for the disorders. Incontinence is an issue for many patients because of neurologic abnormalities. The acuity level of patients' illness and need for care has remained high and more complex than that of traditional nursing home residents, although their acuity level is rising.

Edwards: In the long-term care setting, how do you modify the approach to care for these patients?

Dr. Brechtl: Modifications to the approach to care are numerous. The unit is staffed by full-time salaried physicians and nurse practitioners or physician assistants (four AIDS-experienced physicians and three clinical extenders, i.e., nurse practitioners and physician assistants). The complexity and case-mix of the patients' conditions warrant that a higher level of care delivery be provided at TCCHCC, as opposed to frequent transfers to hospitals. Thus, treatment modalities such as IV fluids and/or antibiotics, blood transfusions, etc., are administered frequently at TCCHCC. The full-time medical presence also results in timely clinical assessments and interventions when conditions change. There is also on-site or on-call medical presence during nights and weekends.

A higher sensitivity to the palliative and end-of-life needs of patients with advanced AIDS has evolved at the Center. We have a policy and procedure to identify patients who are unlikely to survive six months. They receive daily monitoring of pain and other symptoms and more frequent interventions by members of the multidisciplinary team. Likewise, there is an active bioethics program that addresses issues of withholding or withdrawing burdensome treatments during the end-of-life process.

Edwards: How do you modify activity and rehabilitation programs to meet your patients' needs?

Dr. Brechtl: Many patients participate in rehabilitation therapy depending on their condition and restorative potential. Because of the high prevalence of a history of substance abuse, the psychology and social service departments actively involve patients in support groups and counseling. Recreation therapy provides programs and activities that are more appropriate for this younger and special population, such as educational courses, day trips, and hobby clubs. The therapists working with AIDS patients are not the same as those working with the long-term care elderly residents.

Edwards: Considering the high cost of anti-AIDS drugs, does care for this population cost more than for traditional senior residents?

Pages

Topics